Hi everyone - I saw the Neuro-Muscular specialist today; his name is Dr Robert W. Neel. I again got the luck of the draw - he is FANTASTIC. Not only was he incredibly thorough - but kind and compassionate. He genuinely wants to help, and figure out what is going on. He looked right in my eyes and said, "I am sorry this happened to you. I am going to do anything I can to help you, and work to improve your quality of life". I could tell he meant every single word.
First up is blood work, and getting me some comfort from the muscle spasms/contortions, and breathing issues. Working against the clock though as what ever the hell is going on it is progressing - fast. I will update more as I know things. A GINORMOUS thank you to Kelly and Patrick for taking care of CDSN, while being hugely supportive. Finally, thanks to all of you for the continued support and kindness ... it means more then any of you will ever know.
